One foot in front of the other...

I had so much support for my last blog and I cannot thank everyone enough for making me feel that through opening up I can really help others. Equally I'm so pleased to be making people more aware of nephrotic syndrome in general, it isn't something that many people know about, so thank you to anyone that takes the time to read this blog. My last post wasn't the most positive thing I've ever written, so I felt that I needed to write a follow up. I mainly just wanted to get the message out there that things can only get better (in the unfading words of D:Ream.)

Relaxing half term with my pooches. 

Since I wrote my last post I can honestly say that I really have tried to make changes for the better: i've set the wheels in motion to do my teacher training part time, I know its not ideal but I will still get to where I want to be, even if it takes me a bit longer. I feel like I can regain some control and have some time to just get myself back in the best place mentally and physically. I honestly think I might be the luckiest person alive to have such a supportive network around me. People that I would of never of imagined have picked me up and offered their support. I also went back to Lowestoft for half term and spent some well needed time with family and my lovely pack of dogs.

Medically, things have changed too. I went to see my specialist on Monday and so far I've not had a relapse on Rituximab and i'm managing to wean off all my other meds, so kidney wise things are fab. However, recently I've not felt well at all and have constantly struggled with aches, pains, constant tiredness and just being really run down. So after going through everything with my specialist he diagnosed me with ME/CFS caused by long term immunosuppression and what my kidneys are doing to my body. unfortunately there isn't really much  we can do, but in the long run it should pass (everything crossed.) I have to admit it hasn't been the easiest thing to come to terms with, but at the same time I'm kind of glad I know whats going on, I was beginning to feel insane when I was going to bed at 8pm and still struggling with just going to work and doing everyday activities. Alongside that my Doctor also found out I was a bit deficient in phosphate, which can also leave you feeling a bit weak. So all in all I'm pretty weak and watery at the moment! Luckily I can eat foods to boost my levels, my doctor just thinks my kidneys might be leaking it a little, but hopefully we can sort that!!

Just wanted to update you all on the rollercoaster that is my life with NS. I am just taking one day at a time and doing the best I can.  I Hope everyone else is well and that everyone is seeing lots of yellow dips!!