Well I had some good news on Thursday when I went to the hospital everything is still normal, how thankful and lucky am I!! Lets be honest hospital is a big thing for any NS sufferer, as much as you try and keep track there is always that fear they'll find some instability or something, but not this time and I'm over the moon.
But of course with everything being all good comes the reduction in my steroid dose and I've never been more scared, well not to bore you with my history but I've never been able to drop under 10mg and here I am now dropping too 10mg and 7.5mg every other day in the hope that this tiny drop won't cause a relapse! So needless to say this is a big step for me and i'm little bit scared, but excited that I might be able to wean a little bit.
I don't know about any of you but any drop in pred always causes weird side effects, it's like your body is a bit dependant so any drop effects you. I've had in the past couple of days; headaches, muscle ache, crying outbursts and full on mood swings. I think coming back to uni and knowing that my safety net of being at home and close to mum and dad who can sort it out, its silly I'm nineteen but its just the fear of the unknown.
But fingers crossed I'm gonna get through this without a relapse and i'll be on the way to a life without drugs keeping me normal. We will just have to wait and see.
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