I don't often blog this often but I felt like I owed you all something for taking the time to look to my page and giving it a like. So a big thank you, I hope this blog helps but if not it should give you a laugh at my awkward existence! Talking my awkwardness, Nephrotic Syndrome and some of the strange things that come along with it have never really helped the girl who could trip over fresh air before all this came along. So yeah its not been easy and sometimes my confidence has dipped, which I'm sure my fellow suffers will understand that sometimes you just have to laugh at what's thrown at you...
First of all Mood swings- yeah I know this is a horrible side effect of being on a high dose of steroids, which is a common treatment for NS, believe me I've struggled with it, my boyfriend and family deserve a medal for dealing with the ups and down. but looking back now from a much more stable place one memory of makes me laugh every time- I'd been struggling with extreme highs and lows for a while back in the summer of 2014- we were watching Glastonbury and Dolly Parton came on and from out of nowhere I went from dancing round the room to full on sobbing at a coat of many colour much to my families amazement. I've never lived that down and I don't think I will.
Second, Dipsticks and wee pots- probably not so awkward if your living with parents/ partners that understand but when I moved up to Lincoln all my paraphernalia had to come along with me, but as i've said before luckily my house mates are fab and totally support me, the thing that always makes me laugh was the time they all decided too have a go to see what was going on in their pee as you do, it was like a dipstick party!
Theres a lot more things that happen when you've got NS but I haven't quite got the confidence to laugh at them yet, i'll get there eventually and knowing how lucky I am that all of you have chosen to give this a read is such a boost!
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