Friday, 23 September 2016

Spending your life in waiting rooms

Hello all, this is bit of a random blog today, but the idea came to me while sat in a hospital waiting room looking at all the bored faces and then I started to think that as neph patients we do tend to spend a hell of a lot of time waiting round for our various appointments. Don't get me wrong i'm not complaining I know how busy doctors are, but with a lot of eye appointments at the hospital and the opticians, not to mention kidney check ups I honestly feel like I've hardly been out of a waiting room in the last few weeks.


I mean I'm 20 years old so waiting isn't such a difficult task for me, but I have to hand it too the parents of young kids especially those on steroids that managed to keep their kid entertained, it bothers me however when people don't understand that kids want to be playful even when in a hospital- these children are going through as much as any other patient in there and we should give them respect too.

In my previous blog I talked about my eye problems and due to this I have spent far more time than I'd care to admit in the JPH eye department and although the staff are fab you end up spending an awful lot of time waiting about for different test and eye drops to take effect and even though I'm big enough too look after myself dad still comes along with me for support, so a big thanks to him for spending his Saturday morning in a waiting room; which is enough to drive anyone slightly mad (picture to show the madness that developed!).

I've added some pictures different times and different scenarios of my time in waiting rooms (id like to add my phone was on airplane mode and please excuse the snapchat filter and focus on the state of my pupils!) which I think sum up what its like to live life with an invisible illness, when a lot of people ask you why your their as you look far to young and healthy to be at a nephrology clinic. I also hope that some will make you chuckle at my experience of the eye clinic. But wether its waiting for doctors, prescriptions, opticians or a ring back from your nephrologist: having nephrotic syndrome or living with someone who does tends to give you the patience of a saint when it comes to waiting around.