I know now from the many people I have come across since finding the nest trust that we all have different experiences, battles and stories to tell when it comes to the syndrome. I mean compared to many suffers I had my first episode at a relatively strange age. However no matter how different we all may be what strikes me is the overwhelming strength of every single person I've heard from or read about, not only that but the amount of support they have for each other is inspiring. Its great we can try to help each other through this struggle.
At the moment I'm still protein free- which is great. Im starting to come down off my steroids once again which is less fun, I'm all over the place emotionally so if i burst into tears on anyone this is me apologising in advance. my specialist is keeping on 10mg of steroids and 7mg of Tracolimus when I get down to it to prevent any relapse as he doesn't have any other plan when it comes to treatment, he's fresh out of ideas and hoping I grow out of it (not the most encouraging thing I've ever heard, but there we go I'm awkward!)
Lets go back to positives the point I want to make clear is that however you feel you cant let things like this stop you from living your life, Its not something that defines me or anyone else that suffers from it, its just a challenge we have to beat. Last week I went abroad for the first time since being diagnosed nearly 2 years ago and I had the best time ever! There were no hiccups when it came to my health, just had to carry a fair amount of meds with me, but thats not a problem. Of course I was nervous especially flying, but I had a fab holiday and it gave me an escape from all this for bit, just what I needed.
No comments:
Post a Comment