For any NS patient you will all understand the excitement of being protein negative. Well today I saw that little yellow square on my dipper and for me thats about as exciting as it gets, especially when you've been on 40mg of steroids for the last month. The prospect of coming down has got me feeling positive about whats to come.
For anyone who's reading this and doesn't have NS being protein negative is pretty much the light at the end of the tunnel when you've been through a relapse. honestly trust me its a really exciting prospect makes me want to dance around like a little child- I'm that excited.
To be honest I've coped well this relapse- my emotions of been well out of whack of course, I have the emotional range of a tea spoon its either UP or DOWN... thats it theres never a happy medium but hey, lately I've been happy for a majority of the time and really focused on positives. I have my work and a holiday with my boyfriend booked which is really exciting, wheres the point in not doing the stuff that makes us happy. I won't let this win I'm a normal teenage girl with a lot of memories to make.
Ive found the Nest support group totally fab, its great to talk to people that understand what you are going through, I know its not the nicest thing to have in common with someone, but I have come into contact with some amazingly brave and inspiring people. The support I have had in general for writing this has been overwhelming so thank you all.
Who knows whats coming round the corner as far as treatments go- I'm back over to the hospital in a couple of weeks, so heres to hoping for a new plan of action from my doctor. Typical me that I'm a really awkward case but honestly I wouldn't expect nothing else, thats just the way that things go.
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