Wednesday 13 April 2016

Teenage Kicks..

Sorry for neglect of my blog, its just been so busy lately, its coming round to deadline and exam season, so I'm guessing I'm not the only one thats totally stressed out right now. I mean on a side note I seriously glory in any NS sufferers that are sitting exams this year, I sat my A levels swelled up and on a seriously high dose of pred- not the best combo along with exams, but if you do have exams believe in yourself your going to do great, if you live with dodgy kidneys you can get through exams!

Anyway after that little side note I thought as I recently turned 20 it would be a good time to have a look back over nephrotic syndrome effected my teenage years and too remember some of the odd things that happen and how I coped with them ( Probably things a lot of sufferers my age have gone through)

Well I've sort of addressed exams so I guess the most major thing I had to decide on due to NS was whether or not to go to Uni or not. As I was having a really bad time with not getting into remission the first time I applied, I will never be more grateful to myself for deciding to take a year out and get myself better. That year gave me a chance to get back on my feet, get in to a more stable place health-wise and also to grow up and get my confidence back. But my decision to go to uni this year has 100% been worth it and despite of one relapse I've been seriously happy and healthy!

While I'm kind of on the topic of confidence I think thats the second biggest impact NS has had on me. At 17 with my diagnosis my confidence plummeted, i think first and formost it was an impact of the steroids, it was a big change in my system- at first I managed to stay positive but with my second relapse the fear crept in and the weight also piled. For a year or so I was hardly ever off a high dose of steroids, meaning it was hard to ever get my weight down, I was constantly hungry and my face resembled a chipmunk. I at times got very low, but my family, friends and boyfriend were amazing at picking me up.

I guess as I enter my 20's i'm still scared for the future and the unpredictable nature of NS, but I'm 1000% more positive now, I'm feeling a lot better in myself, managed to get back to a weight I'm happy with and my face is almost back to normal and between my last relapses there was about 9 months which gave me the reprieve i needed. So I'm starting 20 hoping this is the year something really works.

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