Look after yourself

So this weekend I took another blow on my nephrotic roller coaster. After a routine eye test a few weeks ago my optician found a blind spot in my eye, he tested my eye pressure which is something they worry about on steroids, which were fine but transferred me to the hospital just too look abit deeper into this blind spot. 

So on Saturday I went to the eye department ( a nice change from renal!) and had the works done; eye scans, field tests and even had my pupils dilated so I looked like a vampire for the rest of the day. The blow came when the specialist established that I had the early stages of glaucoma and although my eye pressures were fine currently, when I had been on high steroids for long periods the damage had already been done. Steroids seriously have so much to answer for, the doctor advised trying to get off them but of course you all know it's never that easy!

Fortunately at the moment it can be treated with eye drops and should all be okay. I was just in shock from how much steroids truly wreck your body and I was extremely lucky that I have regular eye tests due to poor eye sight and therefore this was caught early. 

I've never been warned about steroids effect on your eyes really, not to this extent and wasn't sure if others have been. I just wanted to post this to make sure people do keep a check on it especially parents of young suffers as I'm sure that eye tests are the last thing on your list with everything else you have going on but you don't want something like glaucoma to contend with!

At the moment I feel like all this is really testing me but by sharing it might help someone else avoid it! Forgotten what it's like to have a quiet life, nephrotic really does take over every aspect.