Oh Happy Days!

Its nice to be able to write a positive blog for a change, well I do try and keep this up beat and light, but you know what I mean! so yesterday I had a pretty scary day but it turned out to be one of the best days I've had in ages and gave me the confident boost I was needing!

First of all I had my driving test yesterday morning and I finally passed! its been a long journey to get too and has took me about 3 years with having so many breaks when I had relapsed and also not to mention all the time I didn't have lessons when I was first diagnosed! but hey I've finally done it- proof that nephrotic syndrome may make things harder but it cant ever stop us! So no matter how rubbish things get never give up we are all used to fighting this, so we can fight for everything else we want too!

Second part of my day was a hospital appointment to see my specialist, not really something I really wanted after being so excited about passing my test, I was so scared something was going to happen to bring me down from cloud 9. but again I had positive news that I was totally stable after my relapse and I can start weaning my pred again, until i stick at 10mg (which is great for me that seems to be my lowest that keeps be stable but also lets me feel pretty human!) My Dr doesn't even want to see me until July so fingers crossed I can stay stable and happy!

Sometimes its so easy to look at the negatives when your fighting like this, but just once in a while things can go your way. it 100% gave me the boost of self belief I needed!

Forever hungry..

Glad to be back to writing this blog, the last couple of weeks I've been focused on getting myself back to usual after having to up my pred dose once again! But not wanting this blog to be a place of negativity I'm pleased to say over the weekend I had a yellow stick! So things are finally on the way back to normal and of course the pred wean starts all over again!

So back on the pred wean, I kinda wanted to take a look at the weirdness that is the side effects of steroids. I know it the past ive blogged about the anxiety caused by them, my scars and generally the way they make you feel abit crappy about yourself, Well I guess this is abit of a side note to all that and maybe a less serious aspect to look at but I guess it's still really important... Being hungry all the time! 

On mine and my boyfriends second anniversary I got him a card that said ' I love you even when I'm really hungry' my cravings when I'm on high doses of steriods and the way this effects my mood has become a long running joke now, I guess it's something that you have to laugh about but I'm pretty sure it must have a big impact on a lot of people that are going through similar experiences. 

I know this is a pretty well known trait of steroids and that due to the way they work its extemely common to put on weight while on a high dose, I wanted to look at the comical outcomes of this on a nearly 20 year old girl who is in a constant fight with the steroid hunger and the desparate want to not put weight on. Okay I have to admit it's not always funny and I do hate the fact that most of the time when I'm on a high dose of steroids all I can think about 24/7 is food and a lot of times during a relapse I've piled on the weight due to never feeling full. This time I've come at it from a different angle I keep trying to convince myself I'm not hungry and it's just a side effect (yeah right like that works) but I've also been filling myself up on things like fruit so that I can eat but don't feel nowhere near as guilty as I used too. 

Being away from home at uni I'm trying to give myself a fighting chance of staying healthy and have been cooking from scratch and eating relatively well and I'm quite proud of myself for sticking to my guns, but no matter what I say it's still pretty easy to run to the shop at the end of the road and buy snacks, which probably happens more than I care to admit! Self control is easier said than done when all I want to do is eat everything in sight!