Neuphrotic syndrome and me...

I don't really know where to start, I suppose I should start by explaining this isn't a normal teenage girls blog. Its not going to be hair dye, make up and boyfriends. Nope I'm growing up this time. the idea of starting this is on the off chance that someone might see this and it might help them get through something that I've been struggling with for nearly a year, hopefully to make them feel less alone.

Well here goes, in June last year after being swelled to over three stone heavier than I normally am and having about a million blood tests I as rushed into hospital and diagnosed with Neuphrotic Syndrome, something quite rare for a at the time 17 year old girl. For those who don't know, but if you've found me and are reading this I assume you probably have some idea and were looking for some info like I so often have, as a condition it pretty much is all down to faulty kidneys. This faulty functioning leads to a leak of protein or albumin (I cant even spell it haha) from the blood into the body hence the swelling.

I was treated with a high dose of steroids (don't even get me started on the side effects, that'll come in another post!) , a drip of someone else's albumin and stuff to help me get the water weight off . After a week was allowed to return home, I thought it was all over. I remained on steroids but the dose slowly reduced, I had a care free summer and the best time due to my fantastically supportive family, friends and boyfriend, even managing a whole weekend at Reading fest; obviously far more sober than everyone else, much to my disappointment!

Thinking it was all over was stupid, I couldn't have been more wrong. So now we are nearly a year down the line and I've just relapsed for the third time, not going to lie its been shit but I'm trying to stay positive, not always very successfully but hey ho, thats part and parcel of the steroids. I've had other treatments that haven't worked either but more of that later, I just wanted to establish why I was here and why I was writing. So if  anyone is out there who feels alone because of this horrible condition; that has not only messed my body up but stole my confidence, your not... keep fighting.

Hope this helps someone out there somewhere..